Danny talks about his battle with Motor Neurons Disease, his foundation, his mission and all things MND.
It's been a while since my last update, mainly due to the pandemic and I’m sure you all have had your own issues to deal with over the last 2 years. However, despite Covid having a tight grip on all our lives, MND fundraisers & volunteers have tirelessly continued to raise money in the hope of finding a cure for Motor Neurons Disease. Sir Kevin Sinfield, a friend of former rugby league player and MND sufferer Rob Burrows, recently hit the headlines when he ran 101 miles in 24 hours raising an astonishing £3 million for the MNDA.
Research into MND was given a vital boost in November 2021 when the government committed £50 million over the next 5 years to help find a cure. This was a significant breakthrough in terms of raising awareness and research funding. However, recent reports reveal the government haven’t yet committed any funds to date, with concerns that they may renege on their promise. The MND world is watching Mr Johnson.
With medicine and technology continuing to advance, it’s incredible to think in this day and age, something can’t be done to slow it or even stop it. Over the years I have met several MND sufferers, some who are no longer with us, whose only option is or was palliative care. We don’t want that to be our only option, we need to pull together to stop this disease which was once called rare but has become more prevalent in recent years.
As my body starts to deteriorate, I look back on my coping strategies which have helped me get to where I am today. I remember, 10 years ago, when I started losing the strength in my right arm, saying to myself “Don’t worry I’ve got another one.” Then when the left arm was rendered useless, I switched my mindset to, “At least you can still walk.” When MND took the use of my legs it was, “I still have my voice” but as my speech deteriorates what I am I left with? Well, I have a heart, an amazing wife, two beautiful children, the best support network anyone could ask for and a bucket load of fight. So, as I prepare to enter the business end of this disease, I will continue to push back in the hope that a cure can be found sooner rather than later.
Although I’ve been unable to visit my consultant in Boston, USA, the Zoom meetings have kept me up to speed with any new developments, although with the pandemic, nothing much has changed. I’m hoping, now life is getting back to some normality, the medical world can progress with finding a cure. My mission is to share every trial, every development, and every new piece of new equipment with all the other MND sufferers. This has been and can only be made possible by your kind donations which we continue to raise funds to support the MNDA as well as my own foundation.
Finally, I continue with the day job which keeps me motivated. After 23 years in the industry, I’m not ready to throw in the towel. So, if you need property advice or looking to buy or sell a property then feel free to drop me an email or pop in to the office in Canford Cliffs and say hello!
Donations can be made by clicking this link https://www.gofundme.com/f/dannysmndfoundation